Infant Stage
Some rare diseases can be found at birth through early screening. Some symptoms also appear at or shortly after birth
Rare disease hero
General population
Some rare diseases can be found at birth through early screening. Some symptoms also appear at or shortly after birth
70% rare diseases start at childhood.
Some traits appear as children
grow.
They may grow slower, have learning difficulties, or show unusual traits
Some rare diseases grow quickly during teenage years. They may affect behavior, appearance, or growth
Because of little awareness, people try superstitious remedies.
Misunderstandings and late diagnosis can cause bigger problems
Some never find out until late in life.
Believing they bring bad luck to others.
They live in shame, hiding their condition, always afraid to be judged